Leukodystrophy Center

Adrenoleukodystrophy Registry

One of the keys to understanding adrenoleukodystrophy is the ability to include large numbers of patients and their families from around the world. 

The Leukodystrophy Center at the University of Minnesota is uniquely positioned to answer important questions about ALD related to biomarkers, imaging, the initiation of disease, neuropsychology, oxidative stress, and possible genotype-phenotype correlations.

Our goal is to assemble an even larger resource of clinical and biological data from families affected by ALD to help us understand the natural history and outcomes of disease. We hope to start enrolling patients soon.

Please contact Kelly Miettunen (landb018@umn.edu) or (612) 626-5768 for more information.

dalton
nicholas and mason
tanay